Scott S. Craun Foundation: Round 3 day Two

Our Mission:

The Scott S. Craun Foundation is a non-profit charity created by Scott Craun (1975-2011), a registered nurse in Honolulu, Hawaii. Before Scott passed away from Multiple Myeloma, he took the initial steps to establish a fund that could perpetually aid island-bound cancer patients. Multiple Myeloma is a rare blood cell cancer. Scott's know-how as a health care provider AND a cancer patient lent his mission a laser focus on a specific population. Relatively, there are not many myeloma patients in Hawaii (less than 400). The nearest support groups are in California. This charity will make an important difference in the quality of some of these lives. Like Scott, these patients were told, "You have an 'incurable cancer.' Eventually, you will have to take a break from your work. And the most specialized treatment centers are 2500 miles away."

Scott's wish is to provide Hawaii's myeloma patients (or one family member/care-giver) with round-trip airfare to the Continental US for any oncologist-recommended treatment not available in Hawaii. Stem cell transplant, for example, can be a key to prolonging life--sometimes by years--as it was for Scott. Twice Scott experienced the hardships of this relocation for transplant. Scott had many of us to help him through this burden and he was eternally grateful; many other patients are not nearly as networked. Scott became acutely aware of their immediate need. He left behind documents outlining a non-profit based on incremental goals and longevity as priorities over huge sums of money. Ultimate success means for us to be still providing at least one annual flight on the day Hawaii is capable of all specialized myeloma patient technology. Or, even better: on the day MM is no longer deemed "incurable."

To turn Scott's efforts into reality, we will need your help. One annual donation per person--of any amount--is welcomed, along with your suggestions, fundraising ideas, and maybe a few volunteer hours at our events. All who donate will receive a personal message from our foundation updating you on our balance, expenses, number of donors, upcoming fundraisers, and goals. The specific language in our tax exempt 501(c)3 will be transparent to all. We report to every single donor as if they were an investor, beacause they are. The way we give to patients will be on a very personal basis, and we'll share those stories here. Thank you, stay tuned, and thanks to Scott for pointing us in the right direction! We're going to take what he started . . . and keep it going for as long as there is a demand.

Scott S. Craun Foundation. Domestic Nonprofit Corporation, State of Hawaii File No. 235294 D2.

Make out checks to: / send mail to:
Scott S. Craun Foundation
2700 S. King Street
Unit 11564
Honolulu, HI 96828
ph. (808) 772-0408

CraunFoundation@gmail.com

Wednesday, December 7, 2011

Round 3 day Two

Day Two's chemo went without a hitch. I did have to rush out for a platelet transfusion at 1pm in order to make my 3:30am Chemo. My Platelets dropped to 3 (or 3,000). You or a normal person has 150,000 to 450,000 platelets (http://en.wikipedia.org/wiki/Platelet) . That is where all the bruising comes from. With the rushing around I missed my OT appointment, but was still able to get my physical therapy session finished. I only have two more days of the chemo and then I let it work it's magic over the next 3 1/2 weeks. My fourth round is scheduled to start the 3rd of January. That would be the start of my fourth cycle. At that point we may start seeing some changes in my IGD levels & start a discussion about drawling another bone marrow biopsy.

ReMeMbEr make most of your day, and try to avoid the flu....
S-

Guess My Contents and win a Hawaiian surprise!!!!

5 comments:

Ryan Martin said...: It's a steamroller, eh!
Fight on brother!; December 8, 2011 at 5:27 PM
Anonymous said...: Is that your Flux Capacitor???
-Yarger; December 10, 2011 at 9:54 AM
Brooke said...: ughhh I have a guess but not sure it's appropriate for here! I'll text it to you; December 10, 2011 at 1:02 PM
Anonymous said...: Thanks for the updates. I may not reply each time, but I do check in regularly. And, um, no. I don't think I want to know what's in that. lol

---Kimmer, xo; December 10, 2011 at 3:01 PM
Anonymous said...: It's a trick question..... It's empty!
Now what did I win?
Been checkin on ya scooter....
I'll shoot ya an email then...
-Intrieri; December 11, 2011 at 9:09 PM