Sunday, October 30, 2011
Moma's in the House & Chemo Blows
Tuesday, October 25, 2011
No Packed Red Blood Cells or Platelets on Monday Oct 24th
This is the first time in the past 2 months (give or take) that I did not need a transfusion of PRBC longer then a week. It has been 10 days since my last Red Blood Cell transfusion. But what made it a nice day was that I did not need Platelets today either. I did just receiver platelets on Friday so that is part of it. Donor platelets tend to last about 72 hours after infusion. So more then likely I will have a long day on Thursday.
7:30 Lab draw - 8:00am registration and Port-a-cath to be accessed - 9:00am Chemotherapy (premeditation for nausea & side effects for the Chemo around 8:30am - 10:30-11:00am premedication for blood transfusion. 11:00 - 1130am transfusions start. That is if all goes to plan and the RN's / Lab cooperates with the plan and does not make a mistake. Platelet will take 45 minutes from start to finish. The PRBC will take over 2 hours each. Not to mention a little time between (RN availability, picking up the units of blood, Patient verification, which takes 2 RN's) each unit. That can sometimes be half a hour. So the 3 units will take 5 1/2 hours at the minimum. Then my port has to be removed vital signs checked one more time and the following weeks appointments made. So best case I leave by 6pm give of take... Just in case you wanted to get an idea about my transfusion and infusion days.
7:30 Lab draw - 8:00am registration and Port-a-cath to be accessed - 9:00am Chemotherapy (premeditation for nausea & side effects for the Chemo around 8:30am - 10:30-11:00am premedication for blood transfusion. 11:00 - 1130am transfusions start. That is if all goes to plan and the RN's / Lab cooperates with the plan and does not make a mistake. Platelet will take 45 minutes from start to finish. The PRBC will take over 2 hours each. Not to mention a little time between (RN availability, picking up the units of blood, Patient verification, which takes 2 RN's) each unit. That can sometimes be half a hour. So the 3 units will take 5 1/2 hours at the minimum. Then my port has to be removed vital signs checked one more time and the following weeks appointments made. So best case I leave by 6pm give of take... Just in case you wanted to get an idea about my transfusion and infusion days.
Sunday, October 23, 2011
I could not let you create all the good vibes...
I can not rely just on you for all of my positive energy. Walking around the mall looking for a gift is hard work. A couple days ago I took a little break with my friends Ben and Jerry. We reflected on our current situation, our friends and that a month ago I would not have been able to walk around the mall as I just had done. The blog is now alive again, and I plan to make short post on weekly (or bi-weekly) frequency. I hope this finds everyone well... and thanks again for all the support.
I should have bought stock in ice cream....
You guys are out of control.... Ice cream for breakfast.... ice cream with a side of ice cream and an IPA.... There is a lot of you out there so no one needs to take on a gallon of turtle tracks just to keep me up on my feet and moving through the day. That being said I want to thank you guys for everything IT'S WORKING.
scottcraun.blogspot.com
Before this get long, and i hope to keep it short. I want everyone to know that I plan to start blogging again. At least a couple times a week. Short post about how I am feeling, what I got into and what is going on with my treatment. I just know you want to know, i mean who wouldn't... Hello have you seen me.... FABULOUS... minus a couple things: chicken legs (which are not even chx legs anymore.. there skinner with no definition), but other then that..... FABULOUS..... except for maybe the bruises, pasty white skin, pot belly, my hair falling out, being very gassy, having hairy toes (how can you loose all the hair on your head yet still have hair on your toes which occasionally gets knotted or bound to the fibers in your sock and pulled out)..... hairy toes (really)..... other then that...... FABULOUS
So the blog. It has been awhile and still has a lot of older post. It is not up to date as I plan to make it, but that will happen when I have the patients to do so. I left open spots / post back in the blog. I am going to copy and paste my past updates and the updates that Mom's sent out during my stay in the hospital while undergoing my 2nd transplant. They will be back further into the blog... FYI
Now back to me... me, me, me..... Since having my concerns confirmed by my new oncologist......... sending out my update & all the support that I have received....... I have been feeling much better... I give a lot of credit to everyone of you. Your thoughts, support, prayers, positive energy, emails and texts are just what I have needed. I have a long way to go. With all the same issues, but everything seems a little easier the past couple week and half. I sleep a little better in my new recliner
"Zzzzzzzzzz"... I look like a tired old wookiee in his rocker/recliner, and with my frequent blood and platelet transfusion i have more energy and a hamstring on the mend (after almost 2 months of struggling moving around).
So thing are moving in the right direction.....
ALOHA
S-
scottcraun.blogspot.com
Before this get long, and i hope to keep it short. I want everyone to know that I plan to start blogging again. At least a couple times a week. Short post about how I am feeling, what I got into and what is going on with my treatment. I just know you want to know, i mean who wouldn't... Hello have you seen me.... FABULOUS... minus a couple things: chicken legs (which are not even chx legs anymore.. there skinner with no definition), but other then that..... FABULOUS..... except for maybe the bruises, pasty white skin, pot belly, my hair falling out, being very gassy, having hairy toes (how can you loose all the hair on your head yet still have hair on your toes which occasionally gets knotted or bound to the fibers in your sock and pulled out)..... hairy toes (really)..... other then that...... FABULOUS
So the blog. It has been awhile and still has a lot of older post. It is not up to date as I plan to make it, but that will happen when I have the patients to do so. I left open spots / post back in the blog. I am going to copy and paste my past updates and the updates that Mom's sent out during my stay in the hospital while undergoing my 2nd transplant. They will be back further into the blog... FYI
Now back to me... me, me, me..... Since having my concerns confirmed by my new oncologist......... sending out my update & all the support that I have received....... I have been feeling much better... I give a lot of credit to everyone of you. Your thoughts, support, prayers, positive energy, emails and texts are just what I have needed. I have a long way to go. With all the same issues, but everything seems a little easier the past couple week and half. I sleep a little better in my new recliner
"Zzzzzzzzzz"... I look like a tired old wookiee in his rocker/recliner, and with my frequent blood and platelet transfusion i have more energy and a hamstring on the mend (after almost 2 months of struggling moving around). So thing are moving in the right direction.....
ALOHA
S-
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