Giving Flights. Extending Life

Giving Flights. Extending Life

Our Mission:

The Scott S. Craun Foundation is a non-profit charity created by Scott Craun (1975-2011), a registered nurse in Honolulu, Hawaii. Before Scott passed away from Multiple Myeloma, he took the initial steps to establish a fund that could perpetually aid island-bound cancer patients. Multiple Myeloma is a rare blood cell cancer. Scott's know-how as a health care provider AND a cancer patient lent his mission a laser focus on a specific population. Relatively, there are not many myeloma patients in Hawaii (less than 400). The nearest support groups are in California. This charity will make an important difference in the quality of some of these lives. Like Scott, these patients were told, "You have an 'incurable cancer.' Eventually, you will have to take a break from your work. And the most specialized treatment centers are 2500 miles away."


Scott's wish is to provide Hawaii's myeloma patients (or one family member/care-giver) with round-trip airfare to the Continental US for any oncologist-recommended treatment not available in Hawaii. Stem cell transplant, for example, can be a key to prolonging life--sometimes by years--as it was for Scott. Twice Scott experienced the hardships of this relocation for transplant. Scott had many of us to help him through this burden and he was eternally grateful; many other patients are not nearly as networked. Scott became acutely aware of their immediate need. He left behind documents outlining a non-profit based on incremental goals and longevity as priorities over huge sums of money. Ultimate success means for us to be still providing at least one annual flight on the day Hawaii is capable of all specialized myeloma patient technology. Or, even better: on the day MM is no longer deemed "incurable."


To turn Scott's efforts into reality, we will need your help. One annual donation per person--of any amount--is welcomed, along with your suggestions, fundraising ideas, and maybe a few volunteer hours at our events. All who donate will receive a personal message from our foundation updating you on our balance, expenses, number of donors, upcoming fundraisers, and goals. The specific language in our tax exempt 501(c)3 will be transparent to all. We report to every single donor as if they were an investor, beacause they are. The way we give to patients will be on a very personal basis, and we'll share those stories here. Thank you, stay tuned, and thanks to Scott for pointing us in the right direction! We're going to take what he started . . . and keep it going for as long as there is a demand.

Scott S. Craun Foundation. Domestic Nonprofit Corporation, State of Hawaii File No. 235294 D2.

Make out checks to: / send mail to:
Scott S. Craun Foundation
2700 S. King Street
Unit 11564
Honolulu, HI 96828
ph. (808) 772-0408

CraunFoundation@gmail.com

Tuesday, January 26, 2010

It is almost time for my second stint in the medium security prison of City of Hope.... Although prison sounds bad (4 days of dual radiation sessions each lasting one and a half hours long, napalm IV chemo treatments for a couple weeks, poked with more needles then pin head, and hospital food for at least a month), however I have been staying with Ryan and Kristy List since last Wednesday night, and have agreed to stay for another week. I know, i know what was I thinking. May end up being the longest week of my life.

Ahhhhhhhh they know I am kidding RAK has been good to me.

So where am I: Currently in Huntington Beach, CA. 40 minutes from Prison. I started my consults yesterday. Had the last of my blood test drawn. Which they will use to match my anti-bodies with my donors, and type and cross match me for any transfusions that I may need. I spent an hour and a half in CAT Scan getting fitting with a mask, a body molding and tattoo's so that I will always be in the same position when I receive my Radiation. Everything is a go for my Transplant.

I know some of you do not believe me when I say that I am not nervous, anxious, scared, worried or the like.... but i am not. As I like to say "it is what it is." Except what you can not change. That being said I have not completely excepted the fact that the radiation I am going to receive with leave me sterile. Even though this is something I knew it really hit me when the Radiation Oncologist reiterated the fact to me. Sorry Ladies

I do not have a lot of other news to report. I have been feeling pretty good, still tired and mornings are still the worst no matter if I get 10 hours of sleep or 6 hours, but all in all.... it's A'ight

Mom's will be with me for the first 6 weeks or so of my treatment & will help keep everyone up to date on my condition either via the blog or e-mail... Her and I will figure it out before I get admitted on the 8th.

Ok here is the request... starting February 8th... occasionally send me you positive thought and prayers.
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