Giving Flights. Extending Life

Giving Flights. Extending Life

Our Mission:

The Scott S. Craun Foundation is a non-profit charity created by Scott Craun (1975-2011), a registered nurse in Honolulu, Hawaii. Before Scott passed away from Multiple Myeloma, he took the initial steps to establish a fund that could perpetually aid island-bound cancer patients. Multiple Myeloma is a rare blood cell cancer. Scott's know-how as a health care provider AND a cancer patient lent his mission a laser focus on a specific population. Relatively, there are not many myeloma patients in Hawaii (less than 400). The nearest support groups are in California. This charity will make an important difference in the quality of some of these lives. Like Scott, these patients were told, "You have an 'incurable cancer.' Eventually, you will have to take a break from your work. And the most specialized treatment centers are 2500 miles away."


Scott's wish is to provide Hawaii's myeloma patients (or one family member/care-giver) with round-trip airfare to the Continental US for any oncologist-recommended treatment not available in Hawaii. Stem cell transplant, for example, can be a key to prolonging life--sometimes by years--as it was for Scott. Twice Scott experienced the hardships of this relocation for transplant. Scott had many of us to help him through this burden and he was eternally grateful; many other patients are not nearly as networked. Scott became acutely aware of their immediate need. He left behind documents outlining a non-profit based on incremental goals and longevity as priorities over huge sums of money. Ultimate success means for us to be still providing at least one annual flight on the day Hawaii is capable of all specialized myeloma patient technology. Or, even better: on the day MM is no longer deemed "incurable."


To turn Scott's efforts into reality, we will need your help. One annual donation per person--of any amount--is welcomed, along with your suggestions, fundraising ideas, and maybe a few volunteer hours at our events. All who donate will receive a personal message from our foundation updating you on our balance, expenses, number of donors, upcoming fundraisers, and goals. The specific language in our tax exempt 501(c)3 will be transparent to all. We report to every single donor as if they were an investor, beacause they are. The way we give to patients will be on a very personal basis, and we'll share those stories here. Thank you, stay tuned, and thanks to Scott for pointing us in the right direction! We're going to take what he started . . . and keep it going for as long as there is a demand.

Scott S. Craun Foundation. Domestic Nonprofit Corporation, State of Hawaii File No. 235294 D2.

Make out checks to: / send mail to:
Scott S. Craun Foundation
2700 S. King Street
Unit 11564
Honolulu, HI 96828
ph. (808) 772-0408

CraunFoundation@gmail.com

Friday, December 23, 2011

Annual Fundraising Efforts will Honor Scott's Memory. More details to come . . .

Please stay tuned to Scott's blog. Several of us, under Vicki's guidance, will be starting annual fundraising efforts (soon). The theme will be one (or all) of the following three options: 1) we have already made steps toward a Univ. of Hawaii nursing school student scholarship--looking for Scott-like qualities: work ethic, dedication, strength, financial need, devotion to health care; 2) a donation to MM research efforts and trial drugs; 3) perpetuating efforts that Scott started involving helping Hawaii MM patients with treatment travel expense. 


Scott had such a large and generous following of friends and family--and we are going to keep the momentum. A small amount from each of us annually really can make a difference for somebody, or shed light on unknowns in this mysterious form of cancer. Scott said our efforts made a huge difference in his quality of life during the past 4.5 years. He expressed his desire to thank everyone so often . . . and there were so many of us!


We already have enough manpower to sustain 100% of the annual efforts indefinitely--based in Hawaii but including Pennsylvania and all Scott's people nationally and internationally. However, we want opinions.  And everyone who wants to be included, automatically is included.  Our top goal is to perpetuate Scott's memory with action in a way he would himself--a way that will have the most effective future impact on improving lives. We want to honor his near-superhuman battle against myeloma that gifted all of us with extended time with him. Also we want to remember his 32 years prior to MM (the nurse scholarship). E-mail thoughts to jwilson.scshawaii@yahoo.com. 808-772-0408.


I know, very first hand, how recent this has all been. But we can DO things even now.  And one of the best things you can do right now is link your e-mail to these blog posts, or, visit this site two times per month. And talk about this idea with Scott's friends, and your friends, often. Scraun was such a talker. Hard to keep that guy quiet wasn't it . . . .


We'll be in touch,
Scott's Hawaii Friends



2 comments:

Anonymous said...

Love it!
Amy in New York

Anonymous said...

Excellent idea Vicki, Jon, et al. All 3 options have tons of merit and will make a positive difference in many people's lives, so count me in!

Equally as important would be to consider becoming a regular blood and/or plasma/platelet donor... The latter two can be donated more frequently as they simply remove the platelets and/or plasma and return your red blood cells to you, both of which also have a shorter shelf life. The local Red Cross is a good place to start. And if you're even more game, you can check out the Bone Marrow Donor Registry. The Australian website is: http://www.abmdr.org.au/ not sure how similar it is to donating in America...

Been having lots of guilt-free ice cream lately - thanks to you, Scott! Missing you... Leigh B