Last Chemo Infused of course it will come with some bad news!!!

On Monday or Tuesday (day 1 or 2 of the new Chemotherapy Cycle) I started having blurred and double vision (not during or due to the tx: however on one of the same days).  On a visit that Tuesday (i think) Kerri noticed that my left eye appear to have a slight buldge.  My RN was informed who then informed the Md. who oversees MONARC the Skilled Nurse Facility I am living in.  He asked that I see my oncologist later that day if possible when I leave for chemotherapy.  Prior to my chemo treatment I called and talked with my ophthalmologist over the phone. She deduced that this was a neurological problem via the phone prior to my visit with my Onc.  While receiving my Chemotherapy my Onc. examined me and agreed with her.  A MRI was scheduled and there dx of my condition was confirmed.   It appears another mass has been noticed.  It is a little less then an inch in diameter and located just above and outside the previous scan done for my previous mass. This mass is causing the slight bulge in my left eye and is pressing on cranial nerve 1 for sure and possible #'s 2 and 3 as well. 

I am scheduled to see Dr. Pang.  He is the Radiation Oncologist at The Queens Medical Center.  Now my last 12 round trips (under the table no tax) cost me $120 each.  That is just under $1500 for 12 R/T's.  Now these trips are only 5-8 miles one way and take about 1 hour to 1 1/2 hours depending how long you may have to wait.  If going by POV (privet owned vehicle) I need to have a wheelchair, which I currently do not and you are not allowed to remove them from the facility.  This is not an issue since rentals are in-expensive at $75 for a week / $150 for a month. 

So friends if I can go by POV and the tx: are anything like past 12..... I will be in luck and have the same time each day M-F.  I will hope to be squeezed into there schedule at 1:50 - 2:10.  Treatments take 5 minutes and I can be done and out the door.

The main thing to take from this is the new mass.  That means at this time the Cancer is out racing or pacing my Chemo.  This is understandable since my MM has been out of control for at least 6 months, and it is not possible to know how much damage it has done, where all the damage may be and to what extent.  There are obvious areas of damage I know without a doubt that I have something wrong with my right hip, no doubt.

I will be talking with Queens Cancer Center and crossing my fingers that Tuesdays consult can be done over the phone and that I can get a wheelchair by Wednenday and a ride schedule set up for Wednesday through Friday and then for the rest of what is to come.  Please let me know if you think you maybe able to help.  Pick up will be from MONARCH (straight past the guard shack at Kaisers ER) to Queens Cancer Center and there is a location but I need to get an exact parking area for everyone and a few other minor details.  

DO NOT HESITATE TO LET ME KNOW IF YOU SEE ANY ISSUES WITH MY PLANNING.  ANY ADVICE WOULD HELP GREATLY.

ALOHA,
SCOTT

A couple of you collected and sent me leaves (on the down low to help decorate the top of desk) this is a couple pic's from the one's Malia and Jake brought me.