Scott S. Craun Foundation: Waking up with a new resolve and the progress of hospital footware

Our Mission:

The Scott S. Craun Foundation is a non-profit charity created by Scott Craun (1975-2011), a registered nurse in Honolulu, Hawaii. Before Scott passed away from Multiple Myeloma, he took the initial steps to establish a fund that could perpetually aid island-bound cancer patients. Multiple Myeloma is a rare blood cell cancer. Scott's know-how as a health care provider AND a cancer patient lent his mission a laser focus on a specific population. Relatively, there are not many myeloma patients in Hawaii (less than 400). The nearest support groups are in California. This charity will make an important difference in the quality of some of these lives. Like Scott, these patients were told, "You have an 'incurable cancer.' Eventually, you will have to take a break from your work. And the most specialized treatment centers are 2500 miles away."

Scott's wish is to provide Hawaii's myeloma patients (or one family member/care-giver) with round-trip airfare to the Continental US for any oncologist-recommended treatment not available in Hawaii. Stem cell transplant, for example, can be a key to prolonging life--sometimes by years--as it was for Scott. Twice Scott experienced the hardships of this relocation for transplant. Scott had many of us to help him through this burden and he was eternally grateful; many other patients are not nearly as networked. Scott became acutely aware of their immediate need. He left behind documents outlining a non-profit based on incremental goals and longevity as priorities over huge sums of money. Ultimate success means for us to be still providing at least one annual flight on the day Hawaii is capable of all specialized myeloma patient technology. Or, even better: on the day MM is no longer deemed "incurable."

To turn Scott's efforts into reality, we will need your help. One annual donation per person--of any amount--is welcomed, along with your suggestions, fundraising ideas, and maybe a few volunteer hours at our events. All who donate will receive a personal message from our foundation updating you on our balance, expenses, number of donors, upcoming fundraisers, and goals. The specific language in our tax exempt 501(c)3 will be transparent to all. We report to every single donor as if they were an investor, beacause they are. The way we give to patients will be on a very personal basis, and we'll share those stories here. Thank you, stay tuned, and thanks to Scott for pointing us in the right direction! We're going to take what he started . . . and keep it going for as long as there is a demand.

Scott S. Craun Foundation. Domestic Nonprofit Corporation, State of Hawaii File No. 235294 D2.

Make out checks to: / send mail to:
Scott S. Craun Foundation
2700 S. King Street
Unit 11564
Honolulu, HI 96828
ph. (808) 772-0408

CraunFoundation@gmail.com

Saturday, November 19, 2011

Waking up with a new resolve and the progress of hospital footware

So I woke up today with a new resolve and ready to put my foot in the ass of another problem. I just felt good. The past few days I have met some good people during transports to The Queens Medical Center for my radiation treatments (Kaiser ships me down the road about 15 minutes to get tx: Then out of knowwhere my Radiation Oncologist comes over to the gurney I am on and starts chating it up about life in general my treatment and the process of traveling to another hospital to receive treatment. A couple of the transport personnel were down to earth and a little nosy about my condition that somehow help has helped me get past some of my new issues and feeling good today. "TODAY AT LEAST"

Beside that I figured I would share what a week will do for your foot ware when you enter the hospital.

Friday 11/11/2011 did I mention that is a lucky number in most Asian cultures. Admission 2 to Dakine Queens Hospital)

Day 1 Foot Ware, high end socks with ace wraps to decrease the foot swelling.
Day 2 School crossing inflation sleeve to decrease swelling and traffic accidents.
Day 3 Heel boots to reduce friction burn of the heels while in the bed.
Day 4 CPRM (continuous passive range of motion device) made to help keep the muscles stretched and limit atrophy.

Who says American Does Not have Talent.

Compression Sleeves

WTF

CPRM working joints & muscles for a couple hours @ a time.

Heel Boot

4 comments:

Kevin said...: Glad to hear it. Hope it lasts. Ride that wave.; November 19, 2011 at 10:46 PM
Anonymous said...: Heel boot might be Bulldog colors, but compression sleeves are the mighty YSHS Trojans all the way.....; November 20, 2011 at 2:12 PM
Leigh B said...: Thanks for the updates, babe. Sending you good feelings from Sydney (I was going to put Down Under, but thought it might be a bit too racy :). Heading to Red Cross this Fri to donate... Thinking of you, L; November 21, 2011 at 1:00 AM
Noah said...: That's a pretty pimp hat - does the heel boot company know it's so versatile? thanks for sharing; November 21, 2011 at 7:52 PM