Giving Flights. Extending Life

Giving Flights. Extending Life

Our Mission:

The Scott S. Craun Foundation is a non-profit charity created by Scott Craun (1975-2011), a registered nurse in Honolulu, Hawaii. Before Scott passed away from Multiple Myeloma, he took the initial steps to establish a fund that could perpetually aid island-bound cancer patients. Multiple Myeloma is a rare blood cell cancer. Scott's know-how as a health care provider AND a cancer patient lent his mission a laser focus on a specific population. Relatively, there are not many myeloma patients in Hawaii (less than 400). The nearest support groups are in California. This charity will make an important difference in the quality of some of these lives. Like Scott, these patients were told, "You have an 'incurable cancer.' Eventually, you will have to take a break from your work. And the most specialized treatment centers are 2500 miles away."


Scott's wish is to provide Hawaii's myeloma patients (or one family member/care-giver) with round-trip airfare to the Continental US for any oncologist-recommended treatment not available in Hawaii. Stem cell transplant, for example, can be a key to prolonging life--sometimes by years--as it was for Scott. Twice Scott experienced the hardships of this relocation for transplant. Scott had many of us to help him through this burden and he was eternally grateful; many other patients are not nearly as networked. Scott became acutely aware of their immediate need. He left behind documents outlining a non-profit based on incremental goals and longevity as priorities over huge sums of money. Ultimate success means for us to be still providing at least one annual flight on the day Hawaii is capable of all specialized myeloma patient technology. Or, even better: on the day MM is no longer deemed "incurable."


To turn Scott's efforts into reality, we will need your help. One annual donation per person--of any amount--is welcomed, along with your suggestions, fundraising ideas, and maybe a few volunteer hours at our events. All who donate will receive a personal message from our foundation updating you on our balance, expenses, number of donors, upcoming fundraisers, and goals. The specific language in our tax exempt 501(c)3 will be transparent to all. We report to every single donor as if they were an investor, beacause they are. The way we give to patients will be on a very personal basis, and we'll share those stories here. Thank you, stay tuned, and thanks to Scott for pointing us in the right direction! We're going to take what he started . . . and keep it going for as long as there is a demand.

Scott S. Craun Foundation. Domestic Nonprofit Corporation, State of Hawaii File No. 235294 D2.

Make out checks to: / send mail to:
Scott S. Craun Foundation
2700 S. King Street
Unit 11564
Honolulu, HI 96828
ph. (808) 772-0408

CraunFoundation@gmail.com

Thursday, November 10, 2011

It's been some kind of week.

From last Thursday until tonight it has been an interesting week.  We were supposed to go camping, however weather (3 days of heavy rain and the occasional thunderstorm) put the kibosh on 2 nights on the beach under the stars.  With luck on our side a good friend of mine allowed a limited number of persons to stay at his home (a vacation rental on the North Shore).  Prior to heading North my mom and I pick up Leigh Brezler (yes Leigh who graduated from Suburban, now living with her husband and 3 kids just outside the city of Sydney Oz). Leigh was able to visit for four days.  Leigh rounded out her stay with sight seeing, hiking Diamond Head, and shopping for souvenirs.



Somewhere along the way with my continued poor sleep habits, a cold that started on Tuesday developed into a full blown cold.  Sinus and Chest cold.  Same cold I have had 3-4 other times this year.  Now the cold would not be that big of a deal, however I have had a continuation in my back pain.  It is an assumed spinal fracture, a second fracture, a new and or worsening lesion, a collapse lesion (hence a fracture), swelling from overdoing it or a new cyst growing in that area.  It could be any of these or something else.  What I can tell you for sure is this past Monday I have took so pain medication that I was feeling no pain anywhere (except my back was still 7-8 out of 10 in pain).  On a normal day with my regular amount of meds (which is still a lot) I function with a 3-4 out of 10 pain.



So back to my cold & cough.....  Lets just say it hurts a little when I cough...  and after all the dramatic if's above the most likely scenario is that I did it to myself.  Yup lying on my back at the beach for 1/2 an hour or so sometimes propped up by my elbows.  Over did it with something that simple....  Life is like a box of chocolates 

On the up and up though.  This is good news: 2 early to mean anything solid in the Oncology World but is a nice change.  The last four times that I have had blood draw in order to evaluate my levels (to determine the need for Red Blood Cells & Platelets) I did not have to receive Red Blood Cells.  My platelets continue to be low, however are ever so slightly improved.



Ok well mom's leaves tomorrow night, and my friend Brooke (from Potland) who met up with me in Yosemite was on island over the weekend as well.  That along with the crew at the BBQ and Flowers (my roommates) (me their house mooch) for continuing to put up with me and allowing my mom to sleep in the shed, that has made it much easier for her to relax and just walk inside to help me out.  Which like my mom she did a wonderful job of doing.  Her help could not have been needed more then it has been over the past few days.  All that combined has made for one memorable week.



Be well.  I hope I can blog some pic's into the paragraphs.. "Love The house Monkey"

1 comment:

Anonymous said...

You recently made the full transition from HB to House Monkey, I see. This is much like an elevated stage of Jedi training.....to those not in the know......the Force runs strong in this one.....