Giving Flights. Extending Life

Giving Flights. Extending Life

Our Mission:

The Scott S. Craun Foundation is a non-profit charity created by Scott Craun (1975-2011), a registered nurse in Honolulu, Hawaii. Before Scott passed away from Multiple Myeloma, he took the initial steps to establish a fund that could perpetually aid island-bound cancer patients. Multiple Myeloma is a rare blood cell cancer. Scott's know-how as a health care provider AND a cancer patient lent his mission a laser focus on a specific population. Relatively, there are not many myeloma patients in Hawaii (less than 400). The nearest support groups are in California. This charity will make an important difference in the quality of some of these lives. Like Scott, these patients were told, "You have an 'incurable cancer.' Eventually, you will have to take a break from your work. And the most specialized treatment centers are 2500 miles away."


Scott's wish is to provide Hawaii's myeloma patients (or one family member/care-giver) with round-trip airfare to the Continental US for any oncologist-recommended treatment not available in Hawaii. Stem cell transplant, for example, can be a key to prolonging life--sometimes by years--as it was for Scott. Twice Scott experienced the hardships of this relocation for transplant. Scott had many of us to help him through this burden and he was eternally grateful; many other patients are not nearly as networked. Scott became acutely aware of their immediate need. He left behind documents outlining a non-profit based on incremental goals and longevity as priorities over huge sums of money. Ultimate success means for us to be still providing at least one annual flight on the day Hawaii is capable of all specialized myeloma patient technology. Or, even better: on the day MM is no longer deemed "incurable."


To turn Scott's efforts into reality, we will need your help. One annual donation per person--of any amount--is welcomed, along with your suggestions, fundraising ideas, and maybe a few volunteer hours at our events. All who donate will receive a personal message from our foundation updating you on our balance, expenses, number of donors, upcoming fundraisers, and goals. The specific language in our tax exempt 501(c)3 will be transparent to all. We report to every single donor as if they were an investor, beacause they are. The way we give to patients will be on a very personal basis, and we'll share those stories here. Thank you, stay tuned, and thanks to Scott for pointing us in the right direction! We're going to take what he started . . . and keep it going for as long as there is a demand.

Scott S. Craun Foundation. Domestic Nonprofit Corporation, State of Hawaii File No. 235294 D2.

Make out checks to: / send mail to:
Scott S. Craun Foundation
2700 S. King Street
Unit 11564
Honolulu, HI 96828
ph. (808) 772-0408

CraunFoundation@gmail.com

Tuesday, November 22, 2011

Perhaps A Confusing Blog Post

My recent post talking about weakness my not have been clear to some of you. I appologize for any confusion that was caused. At the time I published the post, I had zero to maybe 2% of my normal leg strength. Paralized from the waste down. Now I was and em still hopeful and plan for a 100% return to function. Of course the Dr's put a much different "downer" look @ the picture & have continued to give me the worse possible outlook.

So with that I have been working at(regaining strength, function) my improvement as much as possible. Ok I hope that clears upsome of the con fusion about my weakness. Slight improvement has begun.

Onto what's up......... My radiation & trying to shrink the mass I have in my spine will continue for another 5 sessions. The mass burst through at T-6. X-Rays will be taken today & may give us a little in site into any "SHRINGAGE" which would be a good thing for once. Now I have bony involvement all over this chizzeled frame & the radiation hits T-6 to C-6. With some of the angles the rad actually hit my stream as well. This is good since it has been such a trouble & painful area.

Maybe in a blog post or group email I will give further details about my care or lack there of from my Dr here looking after me & the care of the staff along with thier abilities and poor knowledge of Pt. care. There is way 2 much to get into that this time.

I am still in good spirits, however my Dr. Seems to bring me down every time he enters and leaves my room. Dispute him we'll keep pushing and bust on outnthis ______________!!!!!! just like shawshank sometime in the near future.

Be well everyone, & like always thank you forneverything.
Love Scott

8 comments:

Anonymous said...

Hang in there Scotty. More sexy legg pix please! ;-)

---Kimmer xo

DU said...

All the best to you Scott. Keep the upbeat attitude. You are in my thoughts and prayers.....no matter where the govt may send me...lol--Derek

lcraun said...

your uncle Wayne and family are praying for you. L, WLEA&Wjr

Anonymous said...

For probably the first time ever, you've got a world of peeps praying for your Shrinkage! :o)
Don't let that Dr drag your spirit down, my friend!
peace out....
Yarger

Anonymous said...

Daily posts forwarded to my Inbox--makes it way easy to keep tabs. Try to keep posting every day that you can.

"She saw me toweling off after the pool. It was cold in there. Surely she knows about shrinkage, right? Don't all women know about shrinkage?" -G. Costanza
"No, I don't think they do." -J. Seinfeld

Sue S said...

Stay positive! Stay strong! Praying for shrinkage and healing for you. Love ya!
-Sue

Anonymous said...

G'day from down under, mate. My 5 month old Jersey is sending her gorgeous smile your way, pardon our 2 year old Joe who's too busy with Mr. Potatohead to look up, just got a "woof" out of our dog Boise, although if you saw him you'd think he'd say "Moo" and my wife Lu and I say "keep in good spirits". Thinking about you. Curtis, Lu, Joe,Jersey and the Moo.

Cordi said...

I love your strength, determination, humor, attitude and YOU!!!! Happy Thanksgiving to my dear dear friend!!!!
~ Deb :)