Giving Flights. Extending Life

Giving Flights. Extending Life

Our Mission:

The Scott S. Craun Foundation is a non-profit charity created by Scott Craun (1975-2011), a registered nurse in Honolulu, Hawaii. Before Scott passed away from Multiple Myeloma, he took the initial steps to establish a fund that could perpetually aid island-bound cancer patients. Multiple Myeloma is a rare blood cell cancer. Scott's know-how as a health care provider AND a cancer patient lent his mission a laser focus on a specific population. Relatively, there are not many myeloma patients in Hawaii (less than 400). The nearest support groups are in California. This charity will make an important difference in the quality of some of these lives. Like Scott, these patients were told, "You have an 'incurable cancer.' Eventually, you will have to take a break from your work. And the most specialized treatment centers are 2500 miles away."


Scott's wish is to provide Hawaii's myeloma patients (or one family member/care-giver) with round-trip airfare to the Continental US for any oncologist-recommended treatment not available in Hawaii. Stem cell transplant, for example, can be a key to prolonging life--sometimes by years--as it was for Scott. Twice Scott experienced the hardships of this relocation for transplant. Scott had many of us to help him through this burden and he was eternally grateful; many other patients are not nearly as networked. Scott became acutely aware of their immediate need. He left behind documents outlining a non-profit based on incremental goals and longevity as priorities over huge sums of money. Ultimate success means for us to be still providing at least one annual flight on the day Hawaii is capable of all specialized myeloma patient technology. Or, even better: on the day MM is no longer deemed "incurable."


To turn Scott's efforts into reality, we will need your help. One annual donation per person--of any amount--is welcomed, along with your suggestions, fundraising ideas, and maybe a few volunteer hours at our events. All who donate will receive a personal message from our foundation updating you on our balance, expenses, number of donors, upcoming fundraisers, and goals. The specific language in our tax exempt 501(c)3 will be transparent to all. We report to every single donor as if they were an investor, beacause they are. The way we give to patients will be on a very personal basis, and we'll share those stories here. Thank you, stay tuned, and thanks to Scott for pointing us in the right direction! We're going to take what he started . . . and keep it going for as long as there is a demand.

Scott S. Craun Foundation. Domestic Nonprofit Corporation, State of Hawaii File No. 235294 D2.

Make out checks to: / send mail to:
Scott S. Craun Foundation
2700 S. King Street
Unit 11564
Honolulu, HI 96828
ph. (808) 772-0408

CraunFoundation@gmail.com

Sunday, June 24, 2007

Big Changes Short Time 6.24.07

In less then a week my world has completely changed yet again. Since my last posts I have come to a realization and made a very hard decision. In order to give my body the best chance of beating this disease I have decided (with Serena's support) that I will no longer work in the hospital setting. I only worked 2 shifts last week, a 4 hour ER shift and an 8 hours shift in Radiology. Both shifts were easy and without incident, but were very hard on me physically. Just getting up and down reaching across a table and so forth. My fear is that at any time I could "Over do it" wearing myself down or hurting myself worse.

Friday night I tried to sleep lying on my side. It was nice once positioned on the bed. It felt good not sitting up and being off my back (the only way I can sleep). However after just a few minutes I felt a couple of my ribs crunch and my pain has been intense ever since. (2 oxycodone every 4 hours helps... really helps, not to mention the Mojito I had with dinner).... but that is how fragile my ribs have become...

......... back to not working, the reasons why this decision was so difficult to make.... is that I am finally admitting "I can't do this by myself". Like I mentioned in an earlier blog, I have been called stubborn. Even with my Dx. and the prognosis that comes attached I planned to continue working while I received treatment and continue my life without pause. That is no longer possible and I will have to start reaching out for support beyond positive thoughts and prayers.

I want everyone to know it is 9:18 am Sunday morning and what has been typed above is done by a person who feels good. The changes Serena and I will have to make without me working will suck, the fact that it will not be long until I have to sleep in a recliner will suck, the fact that at this time we don't own a recliner and I will have to go "shopping" (shopping... that may be worse then cancer) stinks as well, however it does not depress or distress me. It is just another step in our fight.

On a lighter note I have been taking Chemo for a week without much to write about. Other then having a little fatigue, slight muscle aches, and some not so pleasant but not to bad lower GI statements everything is going well. I will have blood work done on Monday to check for changes in my blood cells. Not the abnormal plasma cells floating around causing havoc (those little shits) but my red and white blood cells. One of the sever side effects of my chemo medication is what it can do to your normal blood cells. besides that my body, actually my skin is often hot, very hot but without me running a fever. When I go to bed and throughout the day I place freezer packs wrapped in a hand towel against my neck, legs or stomach. Also I don't think my deodorant works as well now.. not sure why that is, but that is about all there is to say on my treatment..

On a refreshing side..... I have been know to sample a nice lager, porter or Ale on occasion. Serena and I both enjoy Red wine and would open a bottle once every week or two. I did not drink often or much before I became sick and even less since. Now that being said....... I brewed beer yesterday with my friend Kevin. It is something we had talked about for over a year. It will be a summer ale ready for consumption the beginning of August. Just throwing that tid bit out there so people know I am not confined to the house... it takes me a little longer to get around, but i am still around......

Keep smiling........

9 comments:

Anonymous said...

Hey, shopping for a recliner might not be so bad. Just make sure you have a TV remote attached on one side and a cup holder on the other side for those bottles of home brew!

Glad you're taking care of yourself

Love

Nisi and David

Anonymous said...

Scott - ok the beer and the wine are ok, but what you really need is a good bottle of Scotch !!! In fact I am having one now before I go to bed (not a whole bottle)and I am drinking to you and your recovered health.
Love to both of you. Mum xx

Anonymous said...

The link between your blog and my email does work !
I imagine how difficult the decision to stop working was, and I am glad to read that you had the courage to take it (you're not stubborn). Your fight against the disease is already a full-time work and the most important.
Be sure that you both are in my thoughts every day.
Keep hope and strenght.

Love

Carole

Anonymous said...

I Love you bro, keep your head up! I'll be in touch.....
Ken

Anonymous said...

Glad to hear you are taking care of yourself, even if that means not working. Please know that you are in our thoughts everyday. We'll keep the positive energy coming your way. Oh, on a side note, remember playing Balderdash and you botching up my definition - "doppledated" instead of "dilapidated"? You crack me up, boy! ~Kobie

Anonymous said...

Scott & Serena,
I am so happy your mom will be on her way to see you Wed. I work with her and arranged her flights. She can hardly wait to get there and give you both a great big hug. I hope ya all have a really fantastic visit and are truely able to enjoy each others company. Drink some wine and have some fun. Keep us posted on ya all's events while she is there. I wish I was coming with her. I feel as if you are both part of my family. Your mom is truely an amazing and wonderful person,and a true friend. Love, Terri

Anonymous said...

Scott -

Marie sent us your link and I am so glad. What an excellent way to help you cope and keep others in the loop who care so much about you. Keep in mind that my nursing love is Oncology and I am currently the research nurse in our bone marrow transplant unit, so if you ever need anyone to ask questions feel free to send me an e-mail. By the way, your wife is beautiful and so is your wedding picture. I wish you all the best!!

Jenell (Dorn) Currence :)
jenellcurrence@cox.net

Steph said...

Hey Scott & Serena. Awesome idea having this blog. There are so many people wanting to keep tabs on you! You truly have a cheering section all over the world! That's one hell of a wave!
I love the pictures, especially your wedding photo. Absolutely gorgeous! Stay strong both of you and try to find some humor everyday. Know that you both are in my thoughts and heart everyday.
Lots of love and positive energy,
Steph Crecca (Fox)

"The power of love to change bodies is legendary, built into folklore, common sense, and everyday experience. Love moves flesh, it pushes matter around...Throughout history, 'tender loving care' has uniformly been recognized as a valuable element in healing." ~ Larry Dossey

Anonymous said...

Scott & Serena
You guys have been in my thoughts and heart since the day I got your email. You will overcome this. you are more than welcome to stay at my house in Ewa beach. I know it's far away from Waikiki but the offer stands forever. Don't hesitate to email or call me

All my Love
Ulrika