Scott S. Craun Foundation: The Blog Begins 6.18.07

Our Mission:

The Scott S. Craun Foundation is a non-profit charity created by Scott Craun (1975-2011), a registered nurse in Honolulu, Hawaii. Before Scott passed away from Multiple Myeloma, he took the initial steps to establish a fund that could perpetually aid island-bound cancer patients. Multiple Myeloma is a rare blood cell cancer. Scott's know-how as a health care provider AND a cancer patient lent his mission a laser focus on a specific population. Relatively, there are not many myeloma patients in Hawaii (less than 400). The nearest support groups are in California. This charity will make an important difference in the quality of some of these lives. Like Scott, these patients were told, "You have an 'incurable cancer.' Eventually, you will have to take a break from your work. And the most specialized treatment centers are 2500 miles away."

Scott's wish is to provide Hawaii's myeloma patients (or one family member/care-giver) with round-trip airfare to the Continental US for any oncologist-recommended treatment not available in Hawaii. Stem cell transplant, for example, can be a key to prolonging life--sometimes by years--as it was for Scott. Twice Scott experienced the hardships of this relocation for transplant. Scott had many of us to help him through this burden and he was eternally grateful; many other patients are not nearly as networked. Scott became acutely aware of their immediate need. He left behind documents outlining a non-profit based on incremental goals and longevity as priorities over huge sums of money. Ultimate success means for us to be still providing at least one annual flight on the day Hawaii is capable of all specialized myeloma patient technology. Or, even better: on the day MM is no longer deemed "incurable."

To turn Scott's efforts into reality, we will need your help. One annual donation per person--of any amount--is welcomed, along with your suggestions, fundraising ideas, and maybe a few volunteer hours at our events. All who donate will receive a personal message from our foundation updating you on our balance, expenses, number of donors, upcoming fundraisers, and goals. The specific language in our tax exempt 501(c)3 will be transparent to all. We report to every single donor as if they were an investor, beacause they are. The way we give to patients will be on a very personal basis, and we'll share those stories here. Thank you, stay tuned, and thanks to Scott for pointing us in the right direction! We're going to take what he started . . . and keep it going for as long as there is a demand.

Scott S. Craun Foundation. Domestic Nonprofit Corporation, State of Hawaii File No. 235294 D2.

Make out checks to: / send mail to:
Scott S. Craun Foundation
2700 S. King Street
Unit 11564
Honolulu, HI 96828
ph. (808) 772-0408

CraunFoundation@gmail.com

Monday, June 18, 2007

The Blog Begins 6.18.07

Just giving this blog thing a chance. Want to check how user friendly it is in hopes to keep people posted about how things are going.

If this works you'll see a pic of me by the Golden Gate. Serena and I took a long weekend there about a month ago. It was a week or so before my offical diagnoses. However my diagnoses was not a complete shocker... I was pretty certain of what the Hematologist/Oncologist was going to say before I got the official Dx.

Serena and I had wanted to go to San Fran. for sometime and we knew if we did not get away when we did it may be some time before we got another chance.

9 comments:

Anonymous said...: Hi You Two
"Blog" is a wonderful idea. Have you put Marcellus on?
As Ali G would say - keep it real.
Love you lots. Mum xx; June 19, 2007 at 6:09 AM
Anonymous said...: I think this is a great idea.

We're in your corner!

All our Love

Nisi and David
xxx; June 19, 2007 at 12:24 PM
Anonymous said...: Just dropping a line!
! !
! to say hi and to send my prayers and lots of luv Moum xxxx; June 19, 2007 at 5:24 PM
Anonymous said...: Hi guys

My thoughts are with you every day

Fac et spera - Do and hope
Marcellus; June 19, 2007 at 8:01 PM
Anonymous said...: Great idea you two -

Thanks for keeping us updated! Your in our thoughts and prayers everyday!

Much Love,

Shelby, Clint and Nathan; June 19, 2007 at 11:17 PM
Anonymous said...: Thanks for the update. The blog is a great idea.

Our thoughts and prayers are with you.

Thinking of you,

Chris and Kobie; June 20, 2007 at 12:01 PM
maggie said...: let the magical and mystical powers of the golden gate remind you of the same powers you two posess as a team! sending lots of positive energy and prayers your way....marge maher (used to gerber, always an ECU pirate at heart); June 21, 2007 at 9:46 AM
Anonymous said...: "How do we love? Not in big things but in small things with great love. There is so much love in us all. We must not be afraid to show our love." Mother Teresa

we love you, leia, derek, & baby snyder; June 23, 2007 at 12:23 PM
Anonymous said...: You're in my thoughts

lots of love,
Jean-Marc; June 27, 2007 at 7:05 AM